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Marfan Syndrome

Welcome to the Marfan Syndrome Support Group website.  We hope you will find our site helpful.  It is our hope that we can show our support to you and your family through friendship and people to listen.  We understand the road you are travelling, whether that be first hearing of Marfan/related condition, just diagnosed, or living with the condition.  The group all say how nice it is to meet and know people who truly understand. 

We hope you enjoy browsing our website and that you will contact one of us soon.  We look forward to hopefully meeting you and your family.
Much of the information in this site is with thanks to our partners in support and research the Marfan Foundation of the USA and also the Loeys-Dietz Syndrome Foundation.

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